12月30日,蔡磊發布了一段失聲前錄制的視頻引發關注。
Cai Lei, former vice-president of JD.com and an amyotrophic lateral sclerosis (ALS) patient, revealed in a pre-recorded video released on Tuesday that his condition has progressed to a near-terminal stage, even as he vowed to continue working to push forward treatment breakthroughs.
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確診漸凍癥已超過6年,疾病逐步剝奪了他的行動和語言能力,只能依靠眼控儀與外界交流。
2024年8月,“失聲”前的蔡磊錄下一段特殊的視頻。在錄制時,所有人都希望不要有播放的一天,因為這意味著他已經無法說話。
Diagnosed with ALS more than six years ago, Cai has gradually lost the ability to move and speak and now relies on an eye-tracking device to communicate. The video was recorded in August 2024, before he lost his voice, and was originally intended to remain unpublished unless his condition deteriorated.
談到自己,蔡磊表示,這是去年拍攝但本希望塵封的視頻,那時候還可以說話,面部,嘴巴,下巴、牙床還沒有萎縮塌陷變形……
但在提到患者時,蔡磊表示,幾位患者的激動欣喜視頻卻令人振奮!“現在,部分類型的漸凍癥新病人可以站起來了,可以活下來了!后天元旦,新年信,我再分享更加振奮的視頻!”
In the video, Cai said that while his own health continues to worsen, recent medical advances are bringing genuine hope to other patients.
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視頻公布了多個漸凍癥患者的治療案例,還有蔡磊在2025年底寫下的話。
蔡磊表示,自己的病情已經接近終末期,日夜經受著常人無法想象的疼痛和折磨,但會通過眼控儀繼續滿負荷工作。
“歷史已經被部分改寫,單基因漸凍癥已經重大突破,可以說攻克了。病人不用再死去,早期用藥甚至可以回歸健康生活,其余散發類型的希望也越來越大。”
"History has already been partially rewritten," he said, noting that some single-gene ALS patients may now survive and even return to normal life with early treatment, while prospects are also improving for other ALS forms.
He added that he will continue working intensively with the help of assistive technology and promised to share more encouraging developments in the coming year.
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視頻發布后,話題“蔡磊病情接近終末期”沖上多個熱搜榜第一位。
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在評論區,不少人在為他加油打氣。
Following the video's release, the topic "Cai Lei's condition approaching terminal stage" quickly topped Chinese social media trending lists, with many users expressing support and admiration for his determination and resilience.
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一起期待
解凍的那一天!
來源:中 國青年報 @梨視頻 @蔡磊
跟著China Daily
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“無痛”學英語,每天20分鐘就夠!
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